Provider PGx Resources
Duke University Institute of Genome Sciences and Policy:
http://www.genome.duke.edu/research/genomic-medicine/areas/pharmacogenomics/education/consumers/
National Genetics and Education Development Centre: Pharmacogenetics in Healthcare:
http://www.geneticseducation.nhs.uk/pharmacogenomics-in-healthcare
UK Pharmacogenetics and Stratified Medicine Network:
http://www.uk-pgx-stratmed.co.uk/
PharmGKB:
Cancer Support Organizations
- https://www.cancercenter.com/clinical-trials
- https://www.cancercenter.com/physicians/continuing-medical-education
- https://www.cancersupportcommunity.org/
- https://www.cancer.gov/
- http://www.natamcancer.org/
- https://www.breastcancer.org/
- https://www.brightpink.org/
- http://www.breastcancerdeadline2020.org/
- https://ww5.komen.org/
- https://www.ccalliance.org/
- https://fightcolorectalcancer.org/
- https://melanoma.org/
- https://www.skincancer.org/
- http://www.ovarian.org/
- https://stepsthrough.org/
- https://www.foundationforwomenscancer.org/
- gynecologic-cancers/cancer-types/uterine-endometrial/
- https://www.everydayhealth.com/uterine-cancer/support-groups.aspx
- https://www.pancan.org/
- https://www.pcf.org/
- http://www.prostate-online.com/
- https://zerocancer.org/
- https://www.ustoo.org/
- https://www.cancer.org/
Pulmonary Support Resources
- COPD Foundation – https://www.copdfoundation.org/
- American Lung Association – https://www.lung.org/
- COPD Step by Step – https://www.copd.com/
- Living with COPD – https://www.inspire.com/groups/american-lung-association-copd/
- Breathe California – https://www.lungsrus.org/
- Second Wind STL – https://secondwindstl.org/
- Pulmonary Fibrosis Foundation – https://www.pulmonaryfibrosis.org/
- National Heart, Lung, And Blood Institute – https://www.nhlbi.nih.gov/
- Lungs & You – https://www.lungsandyou.com/
- Pulmonary Hypertension Association – https://phassociation.org/
- Scleroderma Foundation – https://www.scleroderma.org/site/SPageServer/#.X3Ecz2hKhEY
- Hermansky-Pudlak Syndrome (HPS) Network – https://www.hpsnetwork.org/
- The LAM Foundation – https://www.thelamfoundation.org/
- Foundation For Sarcoidosis Research – https://www.stopsarcoidosis.org/
- Children’s Interstitial Lung Disease (chILD) – http://child-foundation.org/
- The American Thoracic Society – https://www.thoracic.org/
- American College of Chest Physicians (ACCP) – http://www.chestnet.org/
- My COPD Team – https://www.mycopdteam.com/
- COPD.net (online community support group) – https://copd.net/
- American Academy of Allergy Asthma and Immunology – www.aaaai.org/conditions-and-treatments/asthma
- Centers for Disease Control and Prevention – www.cdc.gov/asthma
- National Heart, Lung, and Blood Institute – www.nhlbi.nih.gov/health-topics/asthma
- Cystic Fibrosis Foundation – www.cff.org
Cardiovascular Support Resources
- American Heart Association – www.americanheart.org
- American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR) – https://www.aacvpr.org/
- Arrhythmia Alliance (A-A) – www.heartrhythmalliance.org
- Children’s Cardiomyopathy Foundation – www.childrenscardiomyopathy.org
- Dysautonomia Youth Network of America (DYNA) – www.dynakids.org
- Heart Rhythm Society (formerly NASPE) – www.hrsonline.org
- Hypertrophic Cardiomyopathy Association of America – www.4hcm.org
- Arrhythmogenic Right Ventricular Dysplasia (ARVD) – https://my.clevelandclinic.org/health/diseases/16752-arrhythmogenic-right-ventricular-dysplasia-arvd
- Office on Women’s Health (OWH) – www.womenshealth.gov/heart-disease-and-stroke
Neurological Support Group Resources
- Alzheimer’s Association – https://www.alz.org/
- BrightFocus Foundation – https://www.brightfocus.org/
- The National Institute on Aging (NIA) –https://www.nia.nih.gov/health/alzheimers-disease-research-centers
- Alzheimers.gov – https://www.alzheimers.gov/
- Dementia Alliance International –https://www.dementiaallianceinternational.org/
- Brain Injury Association of America – https://www.biausa.org/
- Alzheimer’s Foundation of America (AFA) – https://alzfdn.org/
- National Institute of Neurological Disorders and Stroke – https://www.ninds.nih.gov/
- The AD Foundation – https://ad.foundation/
- UsAgainstAlzheimer’s – https://www.usagainstalzheimers.org/
Genetic Screening Support Group
- Find a Genetic Counselor – https://www.nsgc.org/p/cm/ld/fid=164
- The Genetic Alliance – http://www.geneticalliance.org/
- Genomics & Precision Health – https://www.cdc.gov/genomics/gtesting/genetic_counseling.htm
- National Organization for Rare Disorders – http://www.rarediseases.org/
- National Society of Genetic Counselors –https://www.nsgc.org/
- Baby’s First Test – https://www.babysfirsttest.org/
- RESOLVE: The National Infertility Association – https://resolve.org/what-are-my-options/genetic-screening-and-testing/
- CydanAccelerating Rare Genetic Disease Therapies – http://www.cydanco.com/